Conway’s Law and the future of healthcare data management: Genome, Blockchain, and GDPR
Maladies in healthcare data management are obvious, but what about solutions? From selling Genome data to using Blockchain and the effects of GDPR, would we rather stick to the devil we know?
Healthcare is not only tied to the most basic human needs, it also is a lucrative industry. Its estimated worth is $3 trillion, and it produces and manages about 30 percent of all data.
But there is an array of issues with managing healthcare data. It’s not so much about technology, but more about business models and regulation. Even in the most basic of healthcare data, Electronic Health Records (EHR), patients are mostly out of the loop, and data exchange across healthcare actors is problematic. Standards, regulations, and bodies, such as HIPAA and the 21st Century Cures Act, FHIR, and HRBA, do exist, but it seems they are not sufficient.
ZDNet had an in-depth exchange with Raj Sharma, CEO of Health Wizz, and Evgeny Chereshnev, CEO and founder of Biolink.Tech. The emerging answer to the $3 trillion question of whether we should leave healthcare data management to the likes of Google and Facebook seems like a resounding “No.” Picking up from where we left off, we try to sketch a way forward.